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Table 4 Best practice recommendations

From: Scoping review: mapping clinical guidelines and policy documents that address the needs of women who are dependent on drugs during the perinatal period

Author (Year)

Document Title

Type of recommendations

Recommendations

Greater Glasgow and Clyde NHS (2016)

[CG] Use of alcohol and other drugs in pregnancy: guideline for management flowchart [26]

• Referral pathways

• Practical clinical guidance / medical procedure

• Prescribing protocols

• Provides flow charts for prescribing and management of pregnant women who are using illicit opioids, benzodiazepines, benzodiazepines and opioids together and who are already prescribed opioids

• First visit; confirm pregnancy; take drug history, supervised urine dipstick; prescribing guidance = > diazepam 20mh/day

• Opiate use; if prescribed, arrange of methadone prescription to be continued. If not prescribed, recommends methadone treatment at SNIPS (< 20mg/day, with daily review)

• Benzodiazepine use; if prescribed and agrees to detox, refers to inpatient detox guidelines (external) If declines to detox, notify prescriber that detox has been recommended and declined; if not on prescribed benzodiazepines, offer inpatient detox

• Opiate & Benzodiazepine use; recommends referral to SNIPs, potential commencement of methadone/community prescribing/in patient detox

• In patient management of women already on substitute prescribing for opiate use; contact prescriber (SNIPs/non-SNIPs) to cancel script and commence inpatient prescribing

• Women reporting illicit opiates necessitates immediate admission and stabilisation on prescribed methadone; transfer to SNIPS of existing maintenance methadone prescribing must be authorised by SNIPS; inpatient detox is advised for use of benzodiazepines; SNIPS staff should be notified to ongoing management plans

Greater Glasgow and Clyde NHS (2016)

[CG] Use of benzodiazepines in pregnancy. Guidelines for obstetric management [27]

• Philosophy of care / engagement

• Referral pathways

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Long term users of prescribed benzos should continue at the prescribed dose while in hospital; PWWU illicit benzodiazepines should undergo inpatient detox, and be transferred to SNIPS; PW on > 20mg prescribed benzodiazepines should also be transferred to SNIPS

• Prescribing protocol for benzodiazepines detox (in-patient) in pregnancy: commence at maximum total daily dose of diazepam 30mg administered in 3 divided doses; reduce daily dose of diazepam by 5mg daily, reducing 3 doses in rotation with evening dose delivered last. Women to be accompanied / supervised at all times during inpatient detox

• Uncontrolled use of illicit opiates = obstetric emergency; women should be immediately admitted and stabilised on methadone in accordance with SNIPS guidance; transferring to SNIPS maintenance methadone prescriptions should be authorised by SNIPS; inpatient detoxification is recommended for uncontrolled use of benzodiazepines

• Problem drug use should be recorded in maternal case notes; inform women of health risks to baby

• PWWUD should have abdominal circumference measurements (28–30 wks., and 32–34 wks.) and particular attention paid to abnormal parameters in CTGs

Greater Glasgow and Clyde NHS (2016)

[CG] Use of Opiates in pregnancy. Guidelines for obstetric management [28]

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Child protection / safeguarding procedures

• Clinical guidance on substitute therapies, which includes recommending methadone/buprenorphine and highlighting that dihydrocodeine is not recommended; supervise OST, and adjust doses according to tolerance; detox is not recommended unless correct timing/high chance of success;

• Recommendations for starting doses of methadone; starting dose of prescribed methadone = 5 – 20mg methadone in line with current level of use, and with escalation to the minimum dose that controls withdrawal symptoms; contains guidance for ongoing prescribing, noting not to prescribe above 40mg without consultation

• Outpatient prescribing—SNIPS midwives can sanction 2 consecutive increments of methadone/buprenorphine doses, and reductions in methadone/buprenorphine doses can be authorised by SNIPS midwives on 2 occasions separated by a minimum of 24 h

• Outpatient dispensing must always be in community pharmacies on a daily supervised basis; detailed guidance for inpatient dispensing

• Overall guidance—record drug use; street opiate use is considered an obstetric emergency; community detox is preferred

• Problem drug use should be recorded in maternal case notes; inform women of health risks to baby; PWWUD should have abdominal circumference measurements (28–30 wks., and 32–34 wks.) and particular attention paid to abnormal parameters in CTGs

BASW—Hulmes, A. and Galvani, S. (2019)

A child's first 1000 days: the impact of alcohol and other drugs [29]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Recommends non-judgemental approach; don't assume drug use constitutes automatic risk; be aware of father's substance use; do not overlook protective/resilience factors

• Ask/record questions about parental substance use (don't assume others will)

Holistic—biopsychosocial assessment

Blackpool Better Start. Centre for Early Child Development (2021)

A good practice guide to support the implementation of trauma informed care in the perinatal period [30]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Outlines a whole systems trauma informed care approach. Principles of trauma-informed care in the perinatal period are established as:

Principle 1—Recognition and compassion Principle 2—Communication and collaboration Principle 3—Consistency and continuity Principle 4—Recognising diversity and facilitating recovery

• Recommends the assessment of substance use, an understanding and supportive response to trauma disclosures, empowering women and respecting their choices

• Clear referral pathways needed

Department of Health, Social Services and Public Safety NI (2012)

A Strategy for Maternity Care in Northern Ireland 2012–2018 [31]

• Overarching / organisational approach

• Referral pathways

• Specifies 6 desired outcomes for maternity care: (list) These outcomes will be achieved via 22 objectives

• Specific to PWWUD; Objective 9: there should be clear care pathways for women with long term health conditions who are planning a pregnancy and throughout their pregnancy

• Contains clear schedule of care, and what should happen at each appointment

• Advises recognition that disadvantaged women may be less likely to access maternity care before 12 weeks

• Recommendation that GPs facilitate direct access to a midwife in the community

University Hospitals Birmingham NHS Foundation Trust (2019)

Abstinence Syndrome [32]

• Overarching / organisational approach

• Assessment

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Clinical guidelines on recognition/assessment of NAS: surveillance in hospital for four days post-natal (symptoms may be delayed); clinical guidelines for care of babies exhibiting symptoms of NAS; recommends women care for newborn baby as normal—skin to skin and breastfeeding encouraged apart from cases of high use of maternal benzodiazepine/crack/cocaine; includes discharge guidance

• Check case conference decisions/discharge plans liaise with midwife

• Pharmacological management of babies exhibiting NAS (inc. treatment with opioids/phenobarbital/chlorpromazine)

• Provides chart to assess NAS score in babies

NHS Orkney & Orkney Island Council (2020)

Additional support pathway for women with vulnerabilities [33]

• Overarching / organisational approach

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Recommends co-ordinated services—multiagency involvement & joint assessment; postnatal care discussed with multiagency team pre-discharge

• Offer substance misuse intervention

• Early consultation with specialist substance misuse midwife

Provides flow chart for assessment of unborn baby at risk, which includes timescales and referrals

• Provides timescales for child protection case conferences/pre-birth plans (case conference should take place before 28 weeks, or if late notification, within 21 working days of concerns being raised)

• Notes importance of notification of appropriate health board if a women moves; protocol for Missing Family alert if concerns are raised about a child/family with no known address

NICE (2014; 2020)

Antenatal and postnatal mental health: clinical management and service guidance [34]

• Overarching / organisational approach

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Clinical guidance on treatment options for women who use drugs

• Referral to specialist substance misuse services

• Multi-agency approach to be employed

• Prescribing guidance related to benzodiazepines and detoxification, and treatment of babies post-birth

• Mental health assessments should account for substance misuse; covers screening of babies post-birth

NICE (2021)

Antenatal Care [35]

• Overarching / organisational approach

• Philosophy of care / engagement

• Practical clinical guidance / medical procedures

• Conduct booking appointments as early as possible; offer additional or longer appointments if necessary

• Advocates a sensitive, non-judgemental, and compassionate approach; personalise approach (tailor information to everyone)

• Provide information to women about general health/wellness

Royal College of Obstetricians and Gynaecologists (2012)

Bacterial Sepsis Following Pregnancy. Green–top Guideline No. 64b, [36]

• Overarching / organisational approach

• Referral pathways

• Practical clinical guidance / medical procedures

• Guidance on medical management of injection site lesions and vascular access

• Multiagency consultations recommended with local drugs advisory specialist team, neonatologists

• Early referral to vascular access team

Lingford-Hughes, Welch, Peters and Nutt (2012)

BAP updated guidelines: evidence-based guidelines for the pharmacological management of substance abuse, harmful use, addiction and comorbidity: recommendations from BAP [37]

• Overarching /organisational approach

• Philosophy of care / engagement

• Referral pathways

• Practical clinical guidance / medical procedures

• Specific recommended interventions

• Multi-agency working (Information shared with GPs; provide access to integrated specialist care)

• PWWUD should be fast-tracked into substance use treatment

• Recommends psychosocial interventions for women using stimulants

• Detox should be avoided in the first trimester (risk of miscarriage)

• Offer personalised care

Bristol, North Somerset and South Gloucestershire Clinical Commissioning Group (2021)

Benzodiazepines and Z-drugs as Hypnotics and Anxiolytics [38]

• Practical clinical guidance / medical procedures

• Clinicians to be aware of the effects of benzodiazepines on neonates

Public Health England (2017)

Better care for people with co-occurring mental health and alcohol/drug use conditions [39]

• Overarching / organisation approach

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Assessment should be comprehensive and account for potential co-morbidities (PWWUD are likely to be experiencing co-occurring conditions)

• Referral pathways into substance misuse/mental health programs/mental health

• PWWUD are at risk of losing contact with services – recommends localised, innovative strategies and services models; services should foreground overcoming stigma, mistrust and barriers that may prevent access

• Highlights the importance of the therapeutic alliance, adopting no-judgemental, empathic approach—responding to range of needs (holistic care)

• Services should respond to a range of needs; multiagency working – collaboration with other services

• Services should include safeguarding for children and vulnerable adults

Care Quality Commission (2018, reviewed 2019)

Brief guide: Substance misuse services – People in vulnerable circumstances [40]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Practical clinical guidance / medical procedure

• Comprehensive assessment of needs, inc. factors such as mental health and housing (holistic)

• Review, monitor and respond to changing needs

• Daily records should detail treatment/recovery plans including actions regarding a client’s vulnerable circumstance; plan for emergency care if pregnant women are at high risk during opiate detoxification; monitor pregnancy and postnatal and offer postnatal support

• Recommends multiagency working to meet the needs of the whole family

British Association for Psychopharmacology (2017)

British Association for Psychopharmacology consensus guidance on the use of psychotropic medication preconception, in pregnancy and postpartum 2017 [41]

• Overarching / organisational approach

• Referral pathways

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Specific recommended interventions

• Recommends referral pathways to substance use services for women who use drugs

• Prescribing guidance for methadone, buprenorphine (OST) for PWWUD; prescribing opioid maintenance treatment; pain management in labour; slow reductions in prescribed benzodiazepines

• Facilitate early and effective antenatal care

• Provision of integrated care which includes primary care, addiction services, obstetric and perinatal services

• Information on Harm Reduction should be provided; provision of psychosocial interventions should be provided alongside pharma/medical care

Change, Grow, Live (2019)

Change, Grow, Live (CGL) Procedure: Substance Misuse in Pregnancy [42]

• Overarching / organisational approach

• Philosophy of care / engagement

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Referral pathways

• Specific recommended interventions

• Multi-disciplinary approach—Communication between multidisciplinary team is essential

• Holistic needs assessment

• Risk assessment and multi-agency planning meeting to be conducted before birth

• Treatment/care goals should be realistic and tailored to woman

• May have to split/ increase methadone dose in third trimester

• Any reductions in medications should be gradual, and will need more frequent monitoring; stimulant use should be avoided, should consider risk and possible vaccinations for hep B & C and HIV

• Should fast track pregnant service users to drug services

• Offer psychosocial interventions (especially for drugs with no pharmacological interventions

• Referral pathways flow chart with time scales is provided in Appendix

Aberdeen Alcohol & Drugs Partnership (2019)

Charter 3.2 Births affected by drugs (Health improvement plan) [43]

• Overarching / organisational approach

• Philosophy of care / engagement

• Practical clinical guidance/ medical procedures

• Multiagency collaboration; increase availability of harm reduction support

• Advocates trauma informed approach and holistic assessment of needs

• Support and review contraceptive offerings

• Improve staff training and awareness; consider hidden populations and making 'every interaction count'

NICE (2017)

Child abuse and neglect [44]

• Specific recommended interventions

• Specific intervention models; 1) Parents Under Pressure 2) Additional home visiting programme

Outer Hebrides Drug and Alcohol Partnership and Outer Hebrides Child Protection Committee (2018)

Children affected by parental drug or alcohol related problems GIRFEC oriented inter-agency guidelines [45]

• Overarching / organisational approach

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Midwife to refer on to other agencies (inc. social work) when pregnancy is confirmed; referral to senior staff if women repeatedly miss antenatal appointments

• Decide on pre-birth assessment at 28 weeks and discharge plan

• Multiagency referral and assessment

Flow chart provided for assessment timescale and referral pathways

• NAS necessitates automatic referral to social worker—mother & baby undergo 5-day assessment in hospital

HIPS Safeguarding Children Partnership (2022)

Children living in households where there is substance misuse [46]

• Overarching / organisational approach

• Referral pathways

• Child protection / safeguarding procedures

• Specific recommended interventions

• Women using substances will be identified and referred to substance misuse team

Holistic assessment and family-based approach to be used

• Highlights specific approach to care planning; The Care Planning Approach / Care Co-ordination Approach which includes input from the link midwives and a social worker from Children's social care, who will be invited to any meetings taking place in respect of the child/ren

• If a new-born requires treatment to withdraw from substances, an assessment and a pre-discharge discussion should take place and considerations regarding making a referral to Children's social care in line with the Referrals Procedure before discharge should be considered

• The needs of child should take precedent over confidentiality concerns of substance use services

Hull Safeguarding Children Partnership (2022)

Children of parents or carers who misuse substances [47]

• Referral pathways

• Child protection / safeguarding procedures

• Where a practitioner is working with a pregnant woman who is using substances and has concerns that their parenting capacity may be compromised, make appropriate child protection referrals

• Highlights risks and potential harms to children

• Suggests a family-based approach is adopted

• New-borns with NAS should be referred to child protection services

Regional Child Protection Procedures for West Midlands (2022)

Children of parents who misuse substances [48]

• Philosophy of care / engagement

• Referral pathways

• Provides clear referral pathways to social work services and substance misuse team

• Recommends use of a Care Planning / Care Co-ordination Approach which involves making sure that all professionals involved are invited to key meetings etc

• Stresses that the father should be identified and involved in any assessment

South Lanarkshire Partnership (2021)

Children's Service Plan: 2021–2023 [49]

• Overarching / organisational approach

• Philosophy of care / engagement

• Recommends developing and supporting services which focus on prevention and early interventions for parents using substances during pregnancy

• Recommends a trauma-informed, children’s rights-based approach overall

HM Prison Service (2000)

Clinical services for substance users [50]

• Overarching / organisational approach

• Referral pathways

• Prescribing protocols

• Referral to NHS consultant obstetrician; involvement of specialist health staff with prison health care staff

• Multiagency guidelines for PWWUD, in conjunction with obstetrician and NHS substance use specialist

• Refers to evidence-based guidelines for prescribing for PWWUD

NICE (2016)

Coexisting severe mental illness and substance misuse: community health and social care services [51]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Referral pathway

• Child protection / safeguarding procedures

• Staff in all organisations should consider the varied needs of the population, including physical health problems, homelessness or unstable housing

• Practitioners should be mindful that this population may not access services in a timely manner because of stigma, feelings of coercion, mistrust of services

• Referrals should be made onto substance use, or relevant support services, as unmet need may trigger a relapse. It suggests practitioners provide direct help or refer onto specialist agencies. Practitioners should ensure a woman’s safeguarding needs are met

• Outlines referrals to mental health services, assessment and care planning. This should be person-centred and involve the person’s family and carers

• Trauma informed approach recommended

• A multi-agency approach/partnership working is recommended to address physical health, social care, housing, pregnancy, childcare and other support needs

• Services should be made more inclusive, accessible and more user-friendly for people who use drugs/have co-existing mental health conditions; recommends offering face-to-face and telephone appointments, outlines recommendations for maintaining contact with patients

Derbyshire Safeguarding Children Board (2020)

Derby and Derbyshire Multi Agency Protocol for Pre-Birth Assessments and Interventions [52]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Conduct routine assessments and recording of drug use; ask about partner's/significant adult's drug use

• Refer to substance use services if necessary; refer complex/concerning cases to child protective services

• Ensure drug services support is in place > 24 weeks; recommends multi-agency working

• Practitioners should consider concurrent vulnerabilities (domestic abuse, housing, dual diagnoses) (holistic assessment)

• Includes flow chart with specific timescales for child protection assessment stages and pre-birth conference to be held at 28 weeks

The Royal College of Psychiatrists and the Faculty of Forensic and Legal Medicine (2020)

Detainees with substance use disorders in police custody: Guidelines for clinical management [53]

• Overarching / organisational approach

• Referral pathways

• Practical clinical guidance / medical procedures

• Practical clinical guidance on the procedures for the assessment, treatment, and referrals to be made for women held in police custody who are pregnant and have issues with substance misuse; includes pregnancy testing, examination, and prescribing

Department of Health -Clinical Guidelines on Drug Misuse and Dependence Update 2017 Independent Expert Working Group (2017)

Drug misuse and dependence UK guidelines on clinical management [54]

• Philosophy of care / engagement

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Clinical guidance document that provides clinicians with clear recommendations as to the approach, and procedures to be followed when treating women who use drugs throughout the perinatal period. • Advises trauma-informed care approach

• Advises early assessment of risk and needs with a case conference for unborn babies if at risk of harm, should include parents, and follow integrated care pathways. (Holistic assessment)

• Multi-agency assessment, and clear joint working protocols between domestic abuse and drug services. PWWUD in prison to receive care from multi-disciplinary team

• Advice on stabilising mother in 1st trimester and detoxification in 2nd trimester and specific treatment recommendations

• Suggests balance in reducing drugs, in terms of risk of withdrawal vs risk of patient increasing use

• Encourages breastfeeding

Doncaster and Bassetlaw Teaching Hospitals NHS Foundation Trust (2017)

Drug Misuse Management in the Acute Hospital Setting – guidelines [55]

• Overarching / organisational approach

• Referral pathways

• Prescribing protocols

• Specific recommended interventions

• Encourage a sensitive approach when working with PWWUD; attempt to integrate into mainstream services

• Guidance for OST prescribing in pregnancy; warns against sudden withdrawal of opioids; guidance on initiating methadone prescribing

• Harm reduction re: avoidance of withdrawal

• Urgent referral pathways to integrated care teams, including specialist midwifes, obstetricians and Drug and Alcohol liaison nurse specialist)

National Collaborating Centre for Mental Health (2019)

Drug misuse: Opioid detoxification The NICE Guideline [56]

• Assessment

• Practical clinical guidance / medical procedure

• Assessment—needs to be comprehensive and include drug using history, any other social issues, mental health problems, risk behaviours (holistic)

• For PWWUD, detoxification should only be undertaken with caution

• An examination of patient's physical and psychiatric health is important to assist in the diagnosis of dependence and to assess any further complications to the detoxing process (such as pregnancy); consider the patient's social and personal circumstances, including finances, housing, social support, criminal status etc

• Co-morbid physical or mental health problems should be treated in conjunction with opioid dependence

NHS (2021)

Equity and equality Guidance for local maternity systems [57]

• Philosophy of care / engagement

• Practical clinical guidance / medical procedures

• Ask women with complex social factors about acceptability of services

• Co-produce services according to local need

• Provides a good practice example where a trauma—informed care approach was adopted

• Record the number of women who complex social factors and presentation time

NHS Lothian (2021)

Expressed breast milk: Information for carers of vulnerable babies [58]

• Practical clinical guidance / medical procedures

• Women to be encouraged to breast feed, to develop attachment between infant and mother, except for those using cocaine

Scottish Government (2021)

Families Affected by Drug and Alcohol Use in Scotland: A Framework for Holistic Whole Family Approaches and Family Inclusive Practice [59]

• Philosophy of care / engagement

• Specific recommended interventions

• Key messages about adopting a holistic, trauma informed, and family approach. This involves offering practical support to address wider issues such as poverty and housing as well as ensuring that the whole family is included

• Recommends the "Safe & Together" domestic abuse intervention model

North Lanarkshire CPC & South Lanarkshire CPC & Lanarkshire ADP (2015)

Getting it Right for Children and Families Affected by Parental Alcohol and Drug Use in Lanarkshire [60]

• Overarching / organisational approach

• Assessment

• Referral pathways

• Holistic approach to assessment

• Continuous risk assessment throughout pregnancy

• Referral pathways to good antenatal care, and to specialist midwife (inc. Lanarkshire Additional Midwifery Service—LAMS)

Integrated and multi-agency working

(ELBEG-PP 2013) Whittaker, A., Templeton, L., Mitchell, F., Hill, L. & Neilson, A. (2013)

Getting it right for children and families affected by parental problem alcohol and drug use: Guidelines for agencies in Edinburgh and the Lothians. [61]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Practical clinical guidelines / medical procedures

• Co-ordinated Multi-Agency Working/Whole-family Approach/Holistic approach; professionals and agencies working together to create a comprehensive packaged of care during the antenatal/postnatal period

• Encouraging breastfeeding in women who use drugs, unless the woman is HIV positive

• Continuous Risk Assessment throughout care; and Integrated Assessment; this approach ensures all practitioners and agencies involved with the family are invited to contribute to the integrated assessment, including a multi-agency meeting organised for prior to 24 weeks gestation

• Engage with fathers-to-be and involve them in all aspects of the care process

Scottish Government (2013)

Getting Our Priorities Right (GOPR) [62]

• Overarching / organisation approach

• Philosophy of care / engagement

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Multiagency working; follow the Universal Care Pathway; multidisciplinary assessment and prepare an inter-agency plan prior to birth

• Part of multiagency assessment involves potential contact with a social worker -

• Provide effective antenatal care—Health visitor to conduct a full GIRFEC assessment (may take up to 6 months) and allocate a core or additional health plan indicator

• Babies should remain with their parents where possible

Parental drug use does not necessarily mean children will be adversely affected; any statutory involvement must be justified; substance misuse should prompt assessment, and this should be holistic—including wider social context and need

Forth Valley Drug Partnership and Child Protection Committee (2019)

Getting Our Priorities Right for Children and Families affected by Parental Alcohol and Drug Use: Guidance from the Forth Valley Alcohol and Drug Partnerships and Child Protection Committees [63]

• Philosophy of care / engagement

• Referral pathways

• Child protection / safeguarding procedures

• Women should be encouraged to disclose substance misuse and that worker should have non-judgemental approach to encourage engagement with antenatal and drug services

• Provides guidance on referrals to be made to specialist services – pre-birth planning service, drug, and alcohol services

• Highlights the potential need for child protection procedures—pre-birth child protection conference (to be conducted ASAP)/ post birth child protection case conference, unborn / new-born babies being placed on the child protection case register, and the importance of information sharing

• Holistic and trauma informed care approach to be adopted

East Ayrshire Child Protection Meeting (2014)

Good Practice—Working with Pregnant Women with Parental Substance Misuse [64]

• Philosophy of care / engagement

• Assessment

•Child protection / safeguarding procedures

• Specific recommended interventions

• Key messages about approach and engagement tools. e.g., Effective communication, named support worker (i.e., continuity of care), motivational interviewing

• Recommends a universal model of care and clear care pathways—Flow chart provided in the Appendix

• Child protection referral to be made to SW, and initial CP case conference to be held before 28wks, or within 21 days if late pregnancy. Pre-birth assessment forms and tools in Appendix

• Case manager with empathic relationship with parent (again continuity of care); lead professional and multiagency meetings and assessment; postnatal support from the same worker (continuity of care)

• Intensive parenting programmes recommended to improve outcomes

Department of Health, Social Services, and Public Safety (2020)

Guidance for Alcohol and Drug services in Northern Ireland to best deliver treatment and care during the COVID-19 pandemic [65]

• Prescribing protocols

• OST prescribing guidance during Covid-19; recommends maintaining access to OST and injection equipment must be a high priority

• States that Buprenorphine is preferred to methadone with the caveat—except perhaps in pregnancy

NHS Grampian (2019)

Guidance for the use of buprenorphine products for the treatment of opioid dependence in NHS Grampian [66]

• Philosophy of care / engagement

• Assessment

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Pregnant women can remain on methadone/buprenorphine, if informed of risks; transferring to buprenorphine is not advisable during pregnancy because of risk of precipitated withdrawal (and potentially of inducing withdrawal of the foetus). However, refer to evidence that buprenorphine may result in lower NAS severity

• Consider the impact of buprenorphine on labour pain management plans (as they may impact the management of acute pain) (ES)

• Risk–benefit assessment should be conducted on mothers stabilised on buprenorphine who wish to breastfeed

•General patient best-practice to encourage breastfeeding

• Provide a balanced view of each OST medication to allow patients to make an informed decision; treatment should be tailored to the individual and combined with psychological/social interventions for greater chance of success; opioid dependence should be diagnosed prior to treatment commencing

Barnsley Safeguarding Children Partnership (2022)

Guidelines for multi-agency assessment of pregnant women and their babies in cases where there is substance misuse [67]

• Overarching / organisation approach

• Philosophy of care / engagement

• Referral pathways

• Child protection / safeguarding procedures

• Substance use disclosure necessitates referral to Hospital's Specialist Drug and Alcohol Midwife; fast-track women into substance recovery services

• Encourage partner to access substance recovery services; conduct early assessments where possible

• Provide sensitive and non-judgemental care/information

• Outlines child protection proceedings and for potential pre-birth child protection conferences which should take place at 28 wks

• Recommends multiagency assessment and working, and coordinated clear birth-plans

• It should be explained to women that they should expect to remain in hospital for 5–7 days for the baby to monitored / treated for NAS

Leeds City Council (2010)

Guidelines for the assessment of parental substance misuse [68]

• Referral pathways

• Child protection / safeguarding procedures

• A full child and family assessment to be conducted—covering three main categories: parenting capacity; child's developmental needs; environmental factors. Effort to be made to validate information provided

•Workers should not assume that substance use necessarily mean there are child protection concerns, but if there are concerns of risk of harm a referral to be made to social work children’s team

St Mungo's (2017)

Homeless Pregnancy Toolkit [69]

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Stresses the need for multiagency working; suggests a lead professional can help with engagement and coordinating multiagency work to identify risk. Risk assessment to also consider their partner

• Neutral, non-judgemental advice and support is integral to supporting homeless pregnant women who may have complex trauma and complex social needs, and maybe uncertain about their pregnancy. (trauma informed and holistic)

• Referrals and information sharing need to be timely as women’s circumstances and living circumstances can change quickly and frequently

• Recommends referrals to specialist midwifery service, and drug / alcohol services

•Flow chart with timeline of schedule of care and referrals to be made provided

NHS (2017)

Implementing Better Births, a resource pack for local maternity systems [70]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Specific recommended interventions

• Stresses continuity of care (women to have the same allocated worker throughout), clear referral pathways, and women to be given choices about their birth and care

• Recommends every pregnant woman should have a personalised care plan, created in collaboration with the woman, respecting their rights and choices—provides guidance on how to have a supportive dialogue to facilitate this, and conduct a holistic assessment of need

• Recommends local services building services around a community hub model

Glasgow Child Protection Committee (2008)

Inter-Agency procedural guidance for vulnerable women during pregnancy [71]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Babies should remain with their parents as long as possible

• Confidentiality and information sharing procedures should be transparent and clear

• Child protection concerns should be addressed in a Pre-Birth conference held between 28–32 weeks

• Parents (inc. fathers) should be involved in addictions treatment and support; women should be referred to Women's Reproductive Health Services for specialist care

• Interagency working should include Post-birth plans, and procedures for immediate child protection proceedings; Hospital-based antenatal clinics/inpatient wards should alert hospital based social work units of any safeguarding concerns that arise

• Assessment is an ongoing, collaborative process between agencies and parents; clear, effective communication is essential; parents should be kept informed or Interagency Child Protection Procedures, and the purpose of discussions/conferences. Should be holistic

•Flow chart of clear referral pathways, and Special needs in Pregnancy pathways are provided

NICE (2014; 2017)

Intrapartum care for healthy women and babies [72]

• Assessment

• Pregnant women who use drugs recreationally should have individual assessment when planning place of birth

NICE (2019)

Intrapartum care for women with existing medical conditions or obstetric complications and their babies [9]

• Assessment

• Women who use drugs should have an individual assessment when creating a birth plan and planning for the place of birth

Wilson, C., Boxhall, C. and Kelleher, M. (2019)

Lambeth drug and alcohol service guidelines for the management of substance misuse in the perinatal period [73]

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Comprehensive assessment to be conducted

•Routine enquiry into substance misuse (inc. prescribed medication)

• Routine enquiry should be conducted sensitively

• Any pregnant women presenting to addictions must be referred to the midwifery team immediately

Royal College of Obstetrics and Gynaecology (2010; 2017)

Late intrauterine foetal death and stillbirth [74]

• Practical clinical guidance / medical procedures

• Recommends testing maternal urine for potential hidden drug use (cocaine), with mother's permission

NICE (2021)

Looked-after children and young people [75]

• Overarching / organisational approach

• Philosophy of care / engagement

• Child protection / safeguarding procedures

• Consider professional support for birth parents with substance misuse challenges, that can help with reunification

• Recommends the provision of ‘relational, emotional and mental health support’ alongside court/child protection proceedings, and to continue mental health and drug abstinence support after proceedings/reunification

Encourages trauma-informed care, and that trauma-informed training should be integrated into existing training offerings

University Hospitals Birmingham NHS Foundation Trust (2020)

Management of substance misuse in pregnancy [76]

• Overarching / organisational approach

• Philosophy of care / engagement

• Referral Pathways

• Practical clinical guidance / medical procedures

• PWWUD to be looked after in Substance Misuse Antenatal Clinics (multidisciplinary team); Referred to drugs services

• Maternity staff should be aware of signs/risk of domestic abuse in pregnancy; follow-up women who do not attend routine appointments; outlines drug-specific recommendations

• Ensure multiagency discharge planning and pre-birth conferences are organised as necessary

• Record drug use in a respectful, confidential and accurate way

• Includes referral pathway/assessment flowcharts and week to week care schedules

• PWWUD are advised to stay in the hospital for a minimum of 72 h so that any symptoms of NAS can be managed

University Hospitals Plymouth (2019)

Management of substance use during pregnancy and the postnatal period [77]

• Referral Pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Risk assessment to be conducted for other children involved to assess potential safeguarding concerns

• Referral pathways to specialist midwifery team and drug services

• Breast feeding benefits generally outweigh risks, and women should be able to make an informed decision

• Babies should be observed for NAS for a period of up to 5 days (120 h), dependent on NAS scoring

Royal College of Obstetricians and Gynaecologists (2011)

Management of women with mental health issues during pregnancy and the postnatal period [78]

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Antenatal booking visit -Women to be asked sensitively about any history of using illegal drugs, along with other social / contextual factors such as domestic abuse, previous trauma, social supports etc., (Holistic assessment)

• Women with alcohol or drug misuse should be referred to addiction services

NHS York Teaching Hospital (2019)

Maternity services guideline: Antenatal appointments guideline [79]

• Philosophy of care / engagement

• Assessment

• Referral Pathways

• At antenatal booking appointment, ask sensitively about history of drug use (alongside questions about IPV, sexual abuse or assault, mental health and social support), as this group is especially vulnerable to depression/suicide in pregnancy

• PWWUD should be referred to addiction services in line with local protocol

• Aims to provide evidence-based, holistic recommendations for care of PWWUD

• Contains detailed, week-by-week schedule of care and referral pathways flowchart

Evelina London and NHS Guy's and St Thomas' NHS Foundation Trust (2021)

Maternity substance misuse in pregnancy guideline [80]

• Philosophy of care / engagement

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Recommends that maternity services adopt a sensitive approach pregnant women who use drugs – that they “feel listened to, and their opinions respected”. Maternity care to focus on pregnancy rather than drug use. Birth plan to reflect women’s choices

• Threshold for child protection referral where women use substances is low

• Clinical practice recommendations around prescribing pain relief in labour, and urine testing. Breastfeeding to be encouraged

• Includes flowchart of referrals and care pathways

• Does not specify time a women must remain in hospital but notes that a midwife should begin withdrawal observations on the neonate after birth and continue for up to five days

Wolverhampton Safeguarding Children Board (2013)

Multi-Agency Guidance Hidden Harm – Parental substance misuse and the effects on children [81]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Parents who use drugs can be 'good enough' parents, (not necessarily neglectful)

• Effectively share information (multiagency sharing); conduct ongoing assessments

• Follow outlined care pathways and referrals

• When addressing families where substance use is present, consider other children, and make sure assessment is holistic

Scottish Government (2021)

National Guidance for Child Protection in Scotland 2021 [82]

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Child protection guidance which sets out that all agencies have a responsibility to recognise risks to the child

Included within the definition of neglect provided is harm to unborn babies through drug or alcohol use

• Recommends GP and hospitals must be mindful of domestic abuse especially in specific circumstances—women who are pregnant and have drug and alcohol difficulties

• Community pharmacists to monitor children of parents who use drugs and addiction services

• Prebirth assessment and support suggests where drug use is one alongside other risk factors e.g., previous child removal an Inter-agency referral discussion (IRD) should be triggered. Pre-birth assessment should begin asap where there is risk of significant harm. There should be multi-agency working, a clear plan for the child once it is born, and strengths should also be recognised

• Pre-birth case conferences (called Child Protection Planning Meeting’s) are to be held within 28 calendar days of the concern being raised and within 28 weeks of gestation

• Families, and children who may be removed, deserve trauma informed care to support them and minimise harm

• Care and assessment should also be person-centred and holistic

• Includes child protection referral pathways

Highland Council & NHS Highland (2020)

North Highland Vulnerable Pregnancy Pathway—Taking a trauma informed approach in understanding and responding to vulnerability in pregnancy [83]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Referral Pathways

• Child protection / safeguarding procedures

• Outlines week-by-week antenatal and child safeguarding procedures for vulnerable women, including initiation of case conferences, Health Plan Indicators and continuous assessment

• Recommends SHANARI Wellbeing Assessment tool, multiagency working and that information should be collated by agencies into a single agency chronology. If necessary, a multi-agency chronology can be compiled by the Lead Professional

• Advocates for building trusting relationships based on choice and collaboration empowering families through a trauma informed approach

• Includes a schedule of care; Pregnancy Pathway

Staffordshire, Shropshire & Black Country Newborn and Maternity Network and Southern West Midlands Maternity and Newborn Network (2017)

Obstetric Guidelines 2017–19 [84]

• Child protection / safeguarding procedures

• Referral pathways

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Book consultant care and refer to specialist midwife

• Explicit permission is required to record substance use in handheld notes, as these are readily available (cannot guarantee privacy)

• Advise Hep C screening, alongside routine HIV and Hep B screening; women who are not booked should be screened for blood-borne viruses

• Women are encouraged to begin opioid maintenance programs; consider increasing doses in 3rd trimester to avoid sudden withdrawal; maintain contact with specialist drug worker, and encourage attendance if non-attendance

• In labour: prescribe usual methadone dose and inform anaesthetist and neonatologist

• Postpartum: Encourage breastfeeding, maintain multidisciplinary working; Multiagency discharge planning should be in place, including a referral to children’s services if necessary

NICE (2022)

Opioid dependence: Scenario: Managing special circumstances [85]

• Philosophy of care / engagement

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Key messages about how workers should approach and engage with pregnant women and mothers who use drugs: women may be afraid of being judged, and social services. Treat them same way as all other pregnant women. Emphasise importance of attending healthcare appointments. Try to involve women's partner if appropriate

• Refer to social services if needed and offer referral to drug treatment services

• Provides details of recommended practice for prescribing drug treatments during pregnancy

• Recommends breast feeding except if using high-dose benzodiazepines, cocaine/crack, or HIV positive

Orkney Health and Care (2021)

Orkney Alcohol and Drugs Partnership Strategy 2021–31 [86]

• Overarching / organisational approach

• Philosophy of care / engagement

• Referral pathways

• An overarching local drugs strategy that has key messages about a trauma informed, holistic and family centred approach. Stresses early identification, intervention, multi-agency working and information sharing. Recommends an overall recovery focused model of care

• The strategy recognises women use drugs and are pregnant have specific needs and need access to alcohol and drug treatment during pregnancy and after childbirth

Outer Hebrides Community Planning Partnership (2020)

Outer Hebrides integrated children's services plan [87]

• Overarching / organisational approach

• Assessment

• Referral pathways

• Create an embedded system in maternity services to regularly review and assess vulnerable parents to arrange appropriate targeted support as necessary (continuous assessment)

• Implement multi-agency working sooner in the care process; create effective pathways for vulnerable groups (such as referrals to Vulnerable in Pregnancy), who can provide specialist care

Ensure all support and assistance provided to families is trauma-informed and holistic, addressing issues such as mental health and poverty

The Royal College of Midwives (2020)

Parental emotional wellbeing and infant development [88]

• Overarching / organisational approach

• Philosophy of care / engagement

• Referral pathways

• Ask about substance use sensitively, without a partner present; be available to provide support (talking, listening, understanding)

• Flexible appointments; ensure confidentiality where possible; develop clear multi-agency protocols and referral pathways (social care/third sector)

• Involve referrals to social services for pre-birth assessments/interventions as necessary

• Recognises that for women who have experienced trauma, birth can be a challenging time, and can exacerbate existing trauma (doesn't mention trauma-informed care explicitly)

Milton Keynes Inter-Agency Safeguarding Children Procedures (2022)

Parental Substance Misuse [89]

• Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Stresses that agencies should work in partnership, and the need for information sharing between substance misuse workers, maternity services and social workers. All agencies to contribute to case discussions, pre-birth and child protection case conferences

• If a woman is pregnant and using drugs, early assessment to be made. If there are concerns, she or her partner is "significantly" using drugs then a referral to be made to children's services (CS). If baby is born with NAS immediate referral to CS to be made

• If there has been a previous child taken into care, the woman has been using heroin, methadone, cocaine or comparable substances for a significant period; or is continuing to use heroin or misuse methadone and not preparing for her baby’s arrival a referral must be made to CS

Public Health England (2021)

Parents with alcohol and drug problems: adult treatment and children and family services [90]

• Overarching / organisation approach

• Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Staff should be trained in asking families about alcohol/drug use; staff training should encompass “the skills and confidence of a wide range of professionals” including schools, mental health, criminal justice and care settings to identify potential areas families may need support in

• Recommends a trauma-informed approach, which can improve engagement in services

• Data should be collected and collated on prevalence of families affected by drug/alcohol use in the area; information sharing agreement between adult and children’s services will help with the identification of need early and ensure initial and continual assessment is carried out

• Recommends collaborative assessment; senior leaders should develop a partnership/multiagency system with links to child services; Continuous assessment—services should regularly monitor parental substance use and parental arrangements for potential safeguarding issues; A substance misuse lead in each service can act as a main point of contact and proceed with referrals to drug treatment services

• Referrals from children and family services into drug/alcohol treatment should be considered high priority referrals; drug treatment services can also consider the wider social needs of the family and make referrals to threshold support services (family hubs etc.)

Scottish Government (2020)

Perinatal & Infant Mental Health Programme Board 2020–2021 Delivery Plan [91]

• Overarching / organisational approach

• Philosophy of care / engagement

• Practical clinical guidance / medical procedures

• Specific recommended interventions

• Collaborative and joint working between agencies is essential to ensure continuity of care

• Develop peer support and family support (inc. partners/kinship carers), and that family support services be holistic

• Establish a working group for greater analysis and dissemination

• Increase staffing levels and provision across maternity and antenatal services, including specialist midwives and psychological services. Increase digital access to services

Develop initiatives and resources for workers in specialist PNMH services. Increase capacity by rolling out training programme

• Recommends peer support intervention programme

Sussex Partnership NHS Foundation Trust (2018)

Perinatal Mental Health: Prescribing guidance for trust prescribers and GPs [92]

• Referral pathways

• Women who use drugs who are pregnant should be referred to local substance use services to receive specialist care with input from neonatology and obstetrics

NICE (2021)

Postnatal Care [93]

• Overarching / organisational approach

• Referral pathways

• PWWUD should be referred to local substance misuse

• Management of PWWUD should involve multi-agency collaboration (lead by a substance misuse specialist, ideally including input from neonatology and obstetrics)

Dumfries and Galloway—– Strategic Pre-Birth Planning Group (2019)

Pre-birth assessment protocol for vulnerable pregnancies [94]

• Philosophy of care / engagement • Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Overall, recommends that professionals undertake holistic, needs led/person centred assessments for vulnerable pregnant women and unborn babies

• Information sharing is best practice, but this is overridden by child safety

• If vulnerabilities are identified, midwife to liaise with specialist pre-birth team; all vulnerability team enquiries to be screened by social worker and specialist midwife

• Accurate chronology to be taken from notification of pregnancy

• Pre-birth assessment to be undertaken where vulnerabilities identified; If identified as necessary by the Pre-Birth Assessment, Initial Child Protection Case Conference meeting will be held at 28 weeks to formulate a plan for the child; additional reviews may be conducted if the baby presents with NAS; if a baby presents with NAS without prior notification of substance use, Social Work to convene and Initial Referral Discussion, (to be held same day)

• Babies exposed to maternal substance use or prescribed substitution therapy are required to stay a minimum of 72 h, for observation

• Face-to-face handover to health visitor; Lead professional is always a social worker who coordinates multi-agency assessment, if problematic substance use has been identified

• Contains pre-birth process map/flowchart outlining procedure and referrals

NICE (2010; 2018)

Pregnancy and complex social factors: a model for service provision for pregnant women with complex social factors [95]

• Overarching organisational approach

• Philosophy of care / engagement

• Referral pathways

• PWWUD need supportive and coordinated care during pregnancy

• To address barriers PWWUD face accessing services attention is paid to: integrating care from different services; making sure staff attitudes do not prevent women from using services; tackling women's fears about the involvement of children's services and possibility of their baby being taken into care, providing information specific to their needs; supporting women to address feelings of guilt about their misuse of substances and possible effects on their baby

• Recommends co-ordinated antenatal care across services; one single care shared plan. PWWUD should be allocated a named specialist midwife or doctor who is accessible to them

• Healthcare staff to receive training on needs of PWWUD, and reception staff etc. trained on how to respond sensitively

• PWWUD should be referred to substance misuse service. A variety of engagement & communication methods used. Information to be given on services available, potential harms to baby, and transport options for attending appointments

NHS Lothian (2011)

Pregnancy and problem substance use [96]

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Recommends a non-judgemental approach, holistic assessment, multiagency working, and involvement in planning during pregnancy and once the baby is born. Family support plan in place before baby born. Including fathers is vital

• Drug treatment – women should not feel pressured into stopping drugs. Discuss treatment options with parents and recognise pregnancy as a time mothers and fathers are receptive to harm reduction and improving their health

• Promote breastfeeding unless the woman is HIV positive

• Child Protection – drug use doesn’t necessarily mean risk of harm to baby / infant – if there is concern child protection procedure to be followed

• Postnatal, keep mother and baby on ward for 72 h to monitor for NAS. A strengths-based approach which aims to enhance parenting capacity and interventions which target couples and families rather than parents as individuals

NHS Lothian Quality Prescribing Group Substance Misuse Directorate (2016)

Pregnancy Guidance [97]

• Overarching / organisational approach

• Practical clinical guidance / medical procedures

• Referral pathways

• Prescribing protocols

• Refer women in Edinburgh with additional needs to PrePare

• Maintain good communication between agencies

• Opioid users should begin pharmacotherapy, alongside psychosocial interventions; women using cocaine/stimulants should be advised to stop and offered psychological therapy/family intervention; women on benzodiazepines should be stabilised on diazepam. Women should be maintained on a dose that stops or decreases illicit drug use

• Take into consideration pain management plan in labour, including potentially low threshold for epidural; recommends access to skilled paediatric care

• Continue support (advice/treatment) postnatally; encourage breastfeeding, except in cases of crack/cocaine/high benzodiazepine use

Ministry of Justice and HM Prison and Probation Service (2021)

Pregnancy, mother and baby units (MBUs), and maternal separation from children up to the age of two in women’s prisons [98]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Practical clinical guidance / medical procedures

• Operational policy for mother and baby units in prisons includes key messages around information sharing, and multi-agency case management

• Prisons must consult healthcare on the appropriate clinical representation at case management and birth planning meetings for women in the care of substance misuse teams, and Prison, healthcare and nursery teams should hold regular management meetings to share information and ensure a joined-up, holistic approach

• Breast feeding encouraged when safe

• States that a substance misuse assessment must be completed, considering how to support both the family needs and substance misuse needs of the individual and how these can be managed on an MBU, prescribed medication for treatment of substance (includes prescribing guidance) use is permitted

• Arrangements should be made for women to stay in hospital with their child or provide breastmilk if they are detoxing

States that communication and management of women must be trauma-informed and responsive

Camden and Islington NHS Foundation Trust (2019)

Prescribing guidance for substance misuse services. [99]

• Philosophy of care / engagement

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Although use of buprenorphine is not contraindicated, it is not recommended, as buprenorphine may induce a withdrawal state in the induction phase and put the pregnancy at risk (referenced); Does not recommend buprenorphine whilst breastfeeding, unless on specialist advice; pregnant women should not take dexamphetamine and naltrexone

For benzodiazepine reduction maintain any existing methadone prescription—or buprenorphine—or gradual reduction advised on a long acting benzodiazepine

• Discourage detoxification in the first trimester (risk of spontaneous abortion) and third trimester (risk of stillbirth); encourage breast-feeding unless using crack cocaine, cocaine or high dose benzodiazepines; Advise women test for HIV/Hepatitis

• Multiagency working; liaise with other agencies; support women to attend antenatal appointments/social work case conferences

• Balance the wish of the mother to be opiate free against the risk of withdrawal to the baby

Department of Health, Social Services, and Public Safety (2020)

Preventing Harm, Empowering Recovery: A strategic framework to tackle the harm from substance use (2021–31) [100]

• Overarching / organisational approach

• Philosophy of care / engagement

• PWWUD/individuals in the pre and postnatal period may require additional support and alternative services

• Need for bespoke services for women and girls; recognise that they experience increased rates of abuse and trauma, alongside concurrent stigma and barriers to accessing support. Recommends a trauma-informed approach and developing holistic and flexible joined-up services

• Agencies should strengthen the links between maternity (inc. neonatal) and substance use services, and treatment services should work to make services more accessible for women and individuals with child-caring responsibilities

• Recommends a values and evidence-based approach with a focus on shared responsibility, co-production of services and collaboration

• Services should be universal, but with an increased focus on those most at risk

• Recommends community-based treatment options with local flexibility to address needs and with a focus on long-term recovery and service delivery

Royal College of Obstetricians and Gynaecologists (2015)

Reducing the Risk of Venous Thromboembolism during Pregnancy and the Puerperium (2015) [101]

• Practical clinical guidance / medical procedures

• Risk assessment guidance categorises current intravenous drug users as 'intermediate risk' and the recommendation is to consider testing, supporting, and offering preventative treatment (prophylactic low-molecular-weight heparin (LMWH)) to women both antenatally and postnatally

Scottish Government (2018)

Rights, Respect and Recovery Scotland’s strategy to improve health by preventing and reducing alcohol and drug use, harm and related deaths. [102]

• Overarching / organisational approach

• Philosophy of care / engagement

• Recommends generalised principles such as working in partnerships

• Highlights the importance of challenging stigma; recognise that the whole family needs tailored, stigma-free support

• Services should be informed by families lived experiences

Public Health England (2018)

Safeguarding and promoting the welfare of children affected by parental alcohol and drug use: a guide for local authorities [103]

• Overarching / organisational approach

• Philosophy of care / engagement

• Referral pathways

• Child protection / safeguarding procedures

• Stresses organisations adopt a child-centred and whole family approach, joint working and potential for co-location of drug and alcohol and children services

• Recommends joint working protocols, and information sharing agreements to be established between agencies

• There should be clear referral pathways and procedures between drug / alcohol services and children's services, and other agencies

• A trauma-informed approach should be developed and used in service delivery

Rotherham Safeguarding Children Partnership (2015)

Safeguarding Children of Drug Misusing Parents [104]

• Assessment

• Child protection / safeguarding procedures

• Overarching / organisational approach

• Philosophy of care / engagement

• Referral pathways

• Recognise that drug use is not always an indicator of significant harm; multidisciplinary assessment is necessary to ascertain need and level of risk/harm, including the impact on new-borns with NAS

• Safeguarding guidance; any agency encountering a PWWUD, whose parenting capacity may be impaired must be referred to Children’s Social Care Services; If a newborn is withdrawing from substances at birth, a pre-discharge discussion, and potentially a Strategy discussion should occur before discharge

• Hospital and community maternity services should be involved in all births in which a parent uses drugs

• Information sharing should respect a pregnant woman’s confidentiality; agencies should share information sharing agreements

• Women should be offered non-judgmental and supportive counselling and advice; services should be aware that PWWUD may present late to maternity/antenatal care, but that this could be an indicator of fear of stigma or service involvement, not necessarily of non-co-operation

Cumbria, Northumberland Tyne and Wear NHS Foundation Trust (2019)

Safeguarding Children Practice Guidance Note Addiction Services—Pregnancy Pathway and Guidance – V02. [105]

• Assessment

• Child protection / safeguarding procedures

• Philosophy of care / engagement

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Referral pathways

• Detailed clinical and procedural guidance on the roles, responsibilities and treatment / support to be offered by an allocated keyworker, pregnancy co-ordinator and medical staff, throughout the antenatal and postnatal period. It covers assessment, contact / appointments, information sharing, safeguarding, referral pathways and prescribing

• It is based on ten principles: professionals delivering care will have appropriate skills and knowledge to deal with substance misuse in pregnancy; a Multi-Disciplinary Team (MDT) approach; PWWUD must receive the same quality of care, respect, and dignity as any other woman; a clear understanding of roles and responsibilities; a single plan of care agreed by the multidisciplinary team; addiction service will undertake an assessment and will become the main prescriber throughout, sharing details of the prescription with medical staff; the safety of the child will be paramount. effective communication and integrated working between agencies; a birth plan will ALWAYS be drawn up for child protection cases

• Includes assessment and referral pathway flowcharts

South Gloucestershire Safeguarding Children Board (2015)

Safeguarding Guidance for Substance Misuse [106]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Pre-birth assessments can provide opportunities for expectant parents to make positive changes; remind staff that most substance using parents want to be good parents, and that they are likely to be anxious about potentially losing their child; recommends equal treatment for all parents, and base judgments on evidence not optimism

• Detoxification whilst pregnant requires specialist intervention; be aware of too-rapid detoxification or abstinence carry risk of relapse; do not assume that abstinence will improve parenting; encourage antenatal attendance where possible

• Children born to PWWUD will require ongoing follow-up and monitoring for special health needs; recommends continuous assessment every 6 months post-birth

• If a PWWUD is under 18 years old, services must engage with young people’s drug/alcohol agencies

• Includes safeguarding and referrals flowchart

Rotherham Safeguarding Children Partnership (2016)

Safeguarding Unborn and Newborn Babies [107]

• Overarching / organisational approach

• Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Referral to children's services to be made ASAP

• Detailed guidance around a pre-birth strategy discussion, assessment, and conference. The Pre-birth Triangle is presented as a model for assessing risk to unborn baby and parenting capacity. All agencies to be involved in assessment / strategy discussion

• Following pre-birth Assessment, an Initial Child Protection Conference should be held as early as possible with a Child Protection Review Conference held at least 6 weeks before the expected birth

• A clear action plan to be created to include actions for all agencies involved—and this to be communicated with parents. If significant risk identified a pre-birth child protection case conference to be held, and decision made about care of baby after birth. If baby to be removed from mother’s care—protocol on legal requirements, and communications with parents. This includes arranging support for parents

• Sets out what must be considered at a prebirth and post birth discharge planning meeting; this includes planning contact arrangements if separation planned

• Flow charts provided to cover the full safeguarding process and responsibilities / tasks at each point

NHS England (2019)

Saving Babies Lives Care Bundle v.2 [108]

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Offers guidance related to drug misuse as a moderate risk factor in Foetal Growth Restriction (FGR):

• Prevention = Assess for history of placental dysfunction and consider aspirin 150mg at night < 16 weeks as appropriate

• Risk Assessment/Triage Pathway = Anomaly scan and Estimated Foetal Weight ≥ 10th percentile

• Surveillance Pathway for FGR = Serial ultrasound scans from 32 weeks every 4 weeks until delivery

• Ongoing assessment for complications developing in pregnancy e.g. hypertensive disorders or significant bleeding

• Advise women to tell their midwife about any illegal drug use; encourage/reassure them that any disclosure will be treated with confidence, and information only shared with relevant healthcare professionals

• Advise women to contact FRANK (drugs advice service, via phone)

Shetland Child Protection Committee (2017)

Shetland Integrated Children's Services Plan [109]

• Overarching / organisational approach

• Philosophy of care / engagement

• Promotes a child centred, family-based approach; focus on early intervention and prevention

• Recommends a lead professional identifiable to family

• Non-judgemental approach, and that professionals use a holistic multi-agency approach to assess and respond to need within each individual situation

• Information sharing and joint working between agencies

Southwark Safeguarding Children Partnership (2020)

Southwark Joint Service Protocol to meet the needs of children and unborn children whose parents or carers have substance misuse problems [110]

• Overarching organisational /approach

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Agencies are responsible for identifying PWWUD who may be in need of additional support services; PWWUD are more likely to experience difficulties during pregnancy and following the birth of their baby

• Assessments should be conducted when substance use is identified, to determine other service requirements; including information from their GP, substance misuse services, social services, other agencies etc. and details of previous diagnoses, treatment history and co-existing social problems; liaison with social care regarding previous births is essential; refer PWWUD who have uncontrolled use to specialist services

• Substance use services should provide multi-agency support for PWWUD

• A pre-birth assessment should be undertaken once drug use in pregnancy is identified

• Cessation/reduction in substance use should only be undertaken following consultation with midwifery service/key worker in substance misuse services

• New-born's clinical presentation may require a referral to specialist substance misuse antenatal services, and dispute/lack of referral clearly documented

• Antenatal services should be accessible, and provide honest, sympathetic, consistent and non-judgemental care to help alleviate feelings of guilt/anxiety/being stigmatised

• Advises that women informed of the risks can remain on methadone/buprenorphine during pregnancy; “There is no good evidence of benefit derived from substitution therapy with benzodiazepines during pregnancy”, but notes this could be considered in exceptional circumstances; majority of cases, PWWUD should attempt reduction in use under specialist advice

• Encourage breastfeeding in cases where drug use is stabilised

• Includes detailed referral pathway and decision-making flowchart

NHS Greater Glasgow & Clyde Alcohol and Drug Recovery Services Pharmacy Team (2019)

Standards for Drug & Alcohol Services in Community Pharmacies [111]

• Prescribing protocols

• Promotes harm minimisation

• Objective is to stabilise the woman. Detox should only be conducted if it is considered to be appropriate. If requested, not to be considered until 2nd trimester. Pregnant women to remain on current treatment, methadone, or buprenorphine

• Transfer to buprenorphine during pregnancy is not usually advised because of the risk of triggering withdrawal and the risk of inducing withdrawal in the foetus

North Yorkshire Safeguarding Children Partnership (2019)

Substance Misuse in Parents [112]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Recommends multi-agency working and collaboration between children/family services and substance misuse services to identify, assess, support and treat adults whilst protecting children

• Joint working and sharing information is recommended—drug testing as part of substitution therapy, with results shared if necessary in child protection contexts

• The needs of children must always come first; Notes that not all parents or carers with drug or alcohol problems cause harm to children in their care, but substance use can reduce capacity for effective parenting

• Midwife should be the main point of contact for all agencies, taking the lead on information sharing and co-ordinating service provision for PWWUD whilst ensuring the woman is fully informed

• Substance misuse and Children and Families service support plans should reflect a holistic approach to assisting families

NHS Lothian—Anne Whittaker (2003)

Substance Use in Pregnancy [113]

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Stresses that many factors affect pregnancy and substance misuse is just one

• Recommends a holistic assessment, and that workers have a non-judgemental, pragmatic approach, emphasising harm reduction. Focus on women's needs and choices

• A co-ordinated multi-disciplinary approach, with clear roles and responsibilities of each agency is recommended

• Drug treatment approach to be realistic and tailored to individual

• It is important that PWWUD follow clear care pathway: includes detailed timeline of information to be provided, assessments, risk assessments, birth and post-partum care planning etc

• Women are advised to remain in hospital for 72 h post-birth for monitoring of NAS

• Child protection assessment and referral procedures includes clear criteria for concerns / risk as well as strengths and protective factors, and early intervention strategies that can support the woman in her parenting

• Child protection case conferences should be held 6–8 weeks before the birth date. (32 weeks)

• Includes detailed week-by-week schedule of care

Hull Safeguarding Children's Partnership (2022)

Substance Misuse in Pregnancy [114]

• Overarching / organisational approach

• Philosophy of care / engagement • Assessment

• Child protection / safeguarding procedures

• PWWUD should be encouraged to access antenatal care and treatment early; primary focus is on supporting women, but partners and wider family need to be accounted for

• Respect confidentiality and explain the importance of information sharing; care should be non-judgmental, non-stigmatising and receptive

• At least one (ideally the first) midwifery appointment should be one-on-one, and early identification of vulnerabilities is essential, including risk factors that contribute to poorer outcomes in children; consider and promote protective factors

University of Leicester Hospital Trust (2019)

Substance Misuse in Pregnancy – Guidance for the care of pregnant drug /alcohol users and their babies. [115]

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Comprehensive guidance on the practical steps for assessing and supporting PWWUD at each stage of pregnancy, during and after birth

• Includes referral and care pathway flowchart and detailed schedule of care

• PWWUD to be referred to specialist multi-disciplinary substance misuse team, substance misuse midwives to complete assessment for which there a range of potential outcomes described including a brief intervention / continuation of care by community midwives / specialist midwives to address risks posed by substance misuse etc

• Labour and birth recommendations include continuation of methadone / substitution therapy; all staff to be aware of women's drug use; women to be on open ward; pain relief to be administered PRN; infant to be observed for NAS for 72 h

• Clear guidelines on procedure if baby develops NAS; recommends breast feeding, and management to be conducted in a holistic, family-centred way

• Discharge only to be planned once any case conference etc. held, and social situation clarified

• Threshold for referral to children's services recommended to be low, both antenatally and as inpatient

Heart Of England NHS Trust (2016)

Substance Misuse in Pregnancy (V.4) [116]

• Overarching / organisational approach

• Philosophy of care / engagement • Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Includes flowcharts and schedules of care which outline steps to be taken at each stage which outline instructions for staff liaisons, scans and ultrasounds as necessary; screening in pregnancy and labour begins with testing of urine, and referral to specialist substance use midwife

• Antenatal care; ask women sensitively about substance use; non-judgemental care encourages antenatal attendance, improves monitoring capabilities, and contributes to better outcomes for the baby; Domestic Abuse screening—women to be asked directly/sensitively about injuries (with a non-family interpreter if necessary);

• Women should be referred if not in treatment to specialist services for in-depth assessment including ongoing counselling and stabilising use through substitute prescribing; antenatal care should be considered a key time to address substance misuse; assessments of women’s social circumstances should also be made; if safeguarding concerns arise, refer onto safeguarding midwife

• Mothers to be screened for blood borne viruses, and tests to be offered; mothers that are HIV positive to be referred to specialist care

• Recommendations for NAS—women to be given written/oral information and made aware of care pathways; babies at risk of NAS are not to be delivered at Solihull; keep mothers and babies together where possible; only separate as a last resort; if a mother is only allowed supervised access, the baby must be accommodated on the Neonatal Unit; hospital staff cannot continuously monitor mothers with their babies on postnatal wards; women should be encouraged to remain in hospital for a minimum of 72 h to be monitored for NAS

• Recommendations for inpatient care include ensuring adherence to methadone prescription and thoroughly investigating claims dose has been missed

• Recommends breastfeeding unless woman is HIV positive

• Post birth—Child Protected Case conference should be organised if there is a history of previous children removed into care; facilitate mother: baby bonding; assess maternal wellbeing and parenting skills; report child protection concerns; discharge planning meeting with multi-disciplinary team

• Discharge planning involves; notifying a woman’s specialist midwife/drugs worker; recording urine for medical records; ensuring OST prescriptions are in place and accessible

Walsall Healthcare NHS (2017)

Substance misuse in pregnancy and subsequent care of the newborn [117]

• Referral pathways

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Women who are identified as using drugs during pregnancy to be referred to drug treatment services, if not already involved, children's services, and consultant care for maternity to support multi-disciplinary working. To be encouraged to engage with antenatal care

• Detox from drugs not encouraged—try to stabilise the women on methadone / buprenorphine. This to be continued to be given throughout pregnancy and labour, and additional pain relief prescribed if required

• Women to be made aware of risk of NAS, stay on ward for 72 h after birth to observe baby for NAS

• Breast feeding to be encouraged except known cases of HIV

• Upon discharge, care planning meeting with social care to be held, and community drugs team informed

• Includes Antenatal care flowchart

Royal Cornwall Hospitals NHS Trust (2020)

Substance Misuse in Pregnancy, Labour and Post Delivery Clinical Guideline [118]

• Overarching/ organisational approach

• Philosophy of care / engagement

• Referral pathways

• Practical clinical guidance / medical procedures

• Prescribing protocols

• Child protection / safeguarding procedures

• All women to be asked at booking about substance use and advised it is safest not to; if drug use is identified, referred to addiction services, screened for Hepatitis, initial safeguarding paperwork completed. Information will be shared between safeguarding midwife/addictions worker/social worker; if partner is using, encourage them to seek support from addiction services

Methadone / buprenorphine to be prescribed as required from admission throughout pregnancy

• Refer to Multi Agency Referral Unit if regular antenatal non-attendance occurs, involving other professionals care for the woman

• If safeguarding paperwork has commenced, these women are to be discussed at monthly vulnerable women’s meetings

• Safeguarding midwives must be informed upon antenatal admissions and intrapartum care

• Baby to be monitored for 72 h for NAS; breastfeeding is encouraged

• Upon discharge, prescriptions of methadone/Subutex must be provided; where there are safeguarding issues on discharge, discharging midwife should contact safeguarding midwife, health visitor and social worker; safeguarding midwife is the designated lead for monitoring and compliance

• Includes substance misuse assessment and referral pathway flowchart

Frimley Health NHS Foundation Trust (2021)

Substance Misuse in Pregnancy: multidisciplinary guidelines for Frimley Health NHS Foundation Trust [119]

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Key messages are to work in partnership with parents and adopt a non-discriminatory / non-judgemental approach

• Multidisciplinary working in both the antenatal and postnatal period is imperative

• Detailed outline of the roles and responsibilities of key healthcare staff: midwives, crystal / orcid team, and obstetricians

• Recommends mother remains on the ward for a minimum of 72 h, as withdrawal symptoms may present up to four days post-birth

Welsh Government (2011)

Substance Misuse Treatment Framework (SMTF) Guidance for Evidence Based Community Prescribing in the Treatment of Substance Misuse [120]

• Overarching / organisational approach

• Assessment

• Referral pathways

• Recommends ongoing communication and information sharing between specialist substance misuse and midwifery/obstetric team

• Assessment of risk should occur as soon as possible in the pregnancy, to develop integrated support networks and care plan

• Communicate necessary information for women to support informed decision making

• Monitor dosages closely to ensure adherence to prescribing compliance; perform routine toxicology testing

• Ideally, specialist midwife should coordinate care and signpost to other services

• Outlines comprehensive assessment guidance; identify the nature and severity of the problem and issues around substance misuse; explore the reason(s) for misuse; assess the impact of substance misuse on an individual’s physical, psychological and social functioning; ascertain the client’s cognitive ability; establish the personal resources individuals have to deal with treatment, including support from their family and friends

Birmingham Women and Children's NHS Foundation Trust (2021)

Substance Misuse: Management of Pregnant Women [121]

• Practical clinical guidance / medical procedures

• Referral pathways

• Prescribing protocols

• Child protection / safeguarding procedures

• PWWUD to be referred to specialist midwives who will provide assessment. Outcome could be referred to community midwives, or care to be provided by specialist midwives. They provide specialist care / advice, perform random drug screening to ensure compliance with drug treatment programme, share information with other professionals including community midwife, and drug treatment services

• Recommends referral to the Birmingham Safeguarding protocols, and if significant concern for safety of unborn baby / infant then a Request for Support Referral to Children’s Social Care should be made, preferably with consent

• Labour—should be no different than any other women and follow the women's preferences—any substitute treatment they take to be continued to be given

• Postnatal care—To be transferred together to ward—for women using opiates—observation for 72 h for NAS—which should have been discussed with women in antenatal period. Breast feeding to be encouraged—unless chaotic drug use / HIV positive

• Detailed prescribing advice / recommendations provided throughout in relation to OST, women continuing to use illicit substances etc. Recommends women are stabilised on methadone, and that a flexible approach to OST prescribing is adopted. Advises against prescribing Subutex stating that it is widely known to cause NAS

• Full timeline of checks / assessments to be done, referrals to be made, information to be provided, and information to be shared

• Includes referral pathway/assessment flowcharts

Public Health England (2013)

Supporting information for developing local joint protocols between drug and alcohol partnerships and children and family services [122]

• Overarching / organisation approach

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Service users should be asked about pregnancy; the risks associated with drinking during pregnancy should be discussed

• Local protocol should outline arrangements for working with PWWUD (inc. partners and family); wider alcohol screening in antenatal services could be considered; explore potential for specialist interventions (e.g. Family Nurse Partnerships); early access to antenatal care/joint care planning should be promoted through local arrangements

• Treatment providers should maximise the potential for pregnancy to facilitate motivation to change behaviour

• Refer PWWUD to specialist midwives where possible; referral pathways/criteria for referral should be specified; where no specialist midwife is available, arrangements for management of OST should be set out

• Flowchart of action for referrals to children/family services; pregnant service users to be referred to antenatal care for assessment of treatment/support needs, and detailed week-by-week schedule of care

Tayside Multi-agency Partnership (2021)

Tayside Multi-Agency Practitioner’s Guidance: Concern for Unborn Babies [123]

• Child protection / safeguarding procedures

• Overall encourages information sharing between agencies in the best interest of unborn baby / infant / child and explaining to the families the reasoning behind sharing. Recommends all staff read, are informed of and follow Scottish Government child protection policy documents, and reports relating to parental drug / alcohol use

• Outlines risk of harms to unborn baby / infants. Recommends practitioners understand when to share information; what to share; how much to share; who to share information with and how to share. They must also understand the potential risk of harm if they do not share information

• Desired outcomes include effective inter/intra agency working, holistic assessment and co-ordinated joint working throughout pregnancy and immediately following birth

NHS Ayrshire & Arran (2019)

The Management of High-Risk Pregnancies [124]

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Child protection / safeguarding procedures

• Outlines the referral/assessment process; identified substance use (high risk criteria) necessitates referral to specialist midwife within 2 working days; specialist midwife to conduct pre-birth assessment; results shared with child health protection teams/other necessary agencies, including police to conduct background checks

• Consent is not required to share information in the pre-birth assessment, but is good practice

• The child protection health team is responsible for compiling relevant agency assessments into a master assessment form

• States that pre-birth Child Protection Case Conference (CPCC) should take place no later than at 28 weeks pregnancy

• Includes flowcharts related to referrals and care pathways

National Collaborating Centre for Mental Health (2018)

The perinatal mental health care pathway; Full implementation guidance [125]

• Overarching / organisational approach

• Philosophy of care / engagement

• Whole systems approach to the provision of care; multi-disciplinary

• Emphasises a recovery-based approach to be taken

• Co-ordinated care plan to be created together with the woman, and her needs to be at the centre

• Includes detailed schedules of care, and recommends a biopsychosocial/holistic assessment, considering multiple needs

Norfolk & Waveney NHS Trust (2021)

Trust Guideline for the Care of Vulnerable Women in Pregnancy [126]

• Overarching / organisational approach

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Identification of risks, assessments and care planning should follow the general guidance regardless of vulnerability; women who disclose substance misuse at booking should be referred to appropriate specialist services and consultant led antenatal care

• If safeguarding concerns arise, the pre-birth protocol is to be initiated; all women with safeguarding concerns to receive joint visits with a name health visitor,

• Good communication is essential in multiagency working, between agencies, specialist services, maternity services and the women; communication should always been sensitive and confidential

• All agencies and specialist services engaged with a PWWUD should be informed of a delivery; continued assessment to be provided by the community midwife up to 28 days postnatally, where appropriate

• Notification of discharge from maternity services should be made to relevant services and agencies, including the named health visitor; women and their babies should receive ongoing support and assessment

• Women should be aware of all relevant contacts (Medicom/GP/Health Visitor/out of hours services); change of addresses/contact details is imperative

• Women who do not want to continue a pregnancy are to be referred to GP/local termination services; if a woman is undecided, referral to BPAS for advice and counselling if appropriate

Hull Safeguarding Children's Partnership (2022)

Unborn Procedures and Guidance (Pre-Birth Pathway) [127]

• Overarching / organisational approach

• Referral pathways

• Child protection / safeguarding procedures

• Midwives complete a Pre-Birth Vulnerability Screening Tool—drug / alcohol use is a recognised category of vulnerability and triggers early referrals to specialist agencies

• All agencies to contribute to pre-birth assessment if one is needed. Information sharing is crucial

• Step—Up / Step down approach to safeguarding interventions—If no significant risk identified but need for support is then refer to Targeted Early support team or Significant harm pathway into Children's Social Care—where risks are identified. If risks relate to substance misuse it must be clearly specified what these are

• Multi-disciplinary planning meeting—to be held no later than 20wks, all agencies who will contribute to pre-birth assessment or care plan to contribute. Any assessment conducted to be shared with family by 36 weeks

• Birth plan to be shared with safeguarding midwife. If Child protection Case Conference needed this should be held before 32 weeks

• Staff doing home visits are urged to be aware of need to assess parenting capacity and household environment etc

Scottish Government (2015)

Universal Health Visiting Pathway in Scotland: Pre-birth to Pre-school [128]

• Assessment

• Referral pathways

• Overall, health visitors should work to support a reduction of parental substance misuse where identified; discussing the risks involved with substances on individuals and babies health; make relevant referrals to cessation services

• Provide parenting advice with a focus on attachment—reducing substance misuse is a key parenting issue; substance misuse should be discussed and assessed continuously

• Includes a detailed schedule of a pregnancy and the relevant care delivered during each time frame

• Notes that Health Visitors work holistically with families

East Ayrshire Child Protection Committee (2017)

Vulnerable Pregnancy Procedure [129]

• Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Multi-agency working; person centred, and needs led assessment and care-planning

• If concerns for vulnerable pregnancy (substance misuse is recognised category) referral should be made to initial response team. Community midwife should make referral to safeguarding midwife (SGM). SGM notifies Child protection Health Team

• Multi-agency discussion to be held if vulnerable pregnancy and no SW involvement; decision to be made about lead agency; case to be referred to MARG

• Pre-birth assessment to be completed by SGM, and shared as appropriate / or community midwife if this was agreed

• A child protection pre-birth conference should take place on or before the 28th week pregnancy, or within 21 days for a late presenting pregnancy

• Includes referral flowcharts

• Child Protection concerns identified at any stage a CP alert raised. If concern established SW to lead. If CP case conference held—should decide on what must happen re: care of infant following birth. If no concerns case reverts to community midwives

West Yorkshire Consortium Inter Agency Safeguarding and Child Protection Procedures (2022)

West Yorkshire Consortium Inter Agency Safeguarding and Child Protection Procedure 1.4.15 Children of Drug Misusing Parents [130]

• Overarching / organisational approach

• Assessment

• Referral pathways

• If a PWWUD is identified, referrals must be made to Children’s Social Care Services, and a Pre-Birth Assessment initiated

• Recommends following the Care Planning Approach / Care Co-ordination procedures, which includes input from the link midwife and social worker from Children’s Social Care Services

• Notes that all maternity services should have procedures for pregnant women who use drugs that encourage them to access antenatal services which will help them stabilise, reduce or stop their drug use; PWWUD should be encouraged to contact the Substance Misuse Team for assessment and treatment options

• If a newborn is found to be needing treatment for NAS, a pre-discharge should be scheduled and potentially a Strategy Discussion pre-discharge

Highland Council & NHS Highland (2019)

Women, Pregnancy and Substance Use: Good Practice Guidelines [131]

• Philosophy of care / engagement

• Referral pathways

• Practical guidance / medical procedures

• Prescribing protocols

• Child protection / safeguarding procedures

• Specific recommended interventions

• Emphasis on holistic assessment of need, multi-agency working, engaging women in specialist services early in pregnancy using sensitivity and promoting the women's autonomy. All staff to adopt a trauma informed, non-judgemental and empathic approach. Staff to be open and honest about their role and responsibilities

• Full schedule of maternity care, and support to be provided at each stage. All staff to be trained in supporting PWWUD. Antenatal Plan: additional support for mother and unborn baby’ should be completed by the named midwife—detailing any identified harms to the unborn baby or mother. Early referrals and interventions recommended

• PWWUD to follow RED pathway of care—to be reviewed by obstetrician and individual care plan by maternity care team

• Includes referral flowcharts, recommends women to be referred to specialist drug treatment and support service

• Information to be shared between agencies—clear lines of communication

• OST to be prescribed throughout. Recommends prescribing Buprenorphine stating that there is evidence of better neonatal outcomes. States that methadone has been linked to visual disorders in infants. If a woman is already being prescribed methadone, she can choose to continue with this prescription following discussion around potential risks

• Women who have been using drugs, or on a substitute prescription are expected to remain in hospital for 5 days, as NAS may occur later

• A pre-birth planning meeting must take place no later than 28 weeks gestation following any concerns of substance use

• Motivational interviewing identified as positive tool to engage women

UK Government (2018)

Working Together to Safeguard Children A guide to inter-agency working to safeguard and promote the welfare of children [132]

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedures

• Practitioners should be alert to the potential risks of drug use in parents, other guidance regarding multiagency assessment, early help, referral and information sharing are generic to all children and safeguarding

•Includes flowchart for multiagency referrals/assessment/procedures

• Notes that a high-quality assessment for a child will be holistic

Derbyshire Safeguarding Children Board (2022)

Working with parents who are misusing substances [133]

• Assessment

• Referral pathways

• Child protection / safeguarding procedures

• Any concerns re: substance misuse should be shared with midwife. Promotes information sharing, joint assessments and care planning between agencies

Early Help or pre-birth assessments to be conducted where there is concern about parenting capacity

• Advocates for testing for illicit drugs even if women taking OST

• If NAS occurs unexpectedly should talk to women about what substances illicit or otherwise, she took during her pregnancy. If illicit, referral to children’s services

• A multi-agency Pre-Discharge meeting should be held—clear multi-agency care plan for ongoing assessment, monitoring and support

Aberdeen City Child Protection Committee (2017)

Working with vulnerable unborn babies and their families multi-agency practice guidance [134]

• Overarching / organisation approach

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedure

• Child protection / safeguarding procedures

• Overarching principles; Rights of the child to be safe are paramount

• Working alongside parents in partnership is vital; clear criteria around information sharing and what can remain confidential when considering a child’s safety; assess parenting/caring skills of fathers/significant male figures rather than solely on mothers; Assess the risks of significant parental drug use may have on children/young babies

• Be aware of complex mental health difficulties in children, which may require comprehensive multi-agency assessment; be aware that learning difficulties/complex health challenges may impact on parental caring capacity; building trusting relationships between professionals/parents is imperative

• Be aware of the risks of domestic abuse; be alert to potential harm violent men can inflict on women and children; take account of who is living in households with children, and who might be in contact

• Multi-agency collaboration; police records show past criminal convictions/activity to be used in risk assessment; obtain as much information about parent’s childhoods to identify sources of resilience/parenting styles; Inter-agency collaboration between adult & child services is recommended;

• Advocates for an ecological approach to be taken (child development is seen ‘in context’); assessment should be holistic and consider the whole picture, inc. other services involved, and who should the family be referred on to?

• Agencies should not advise abstinence or cessation from drugs without GP/midwifery/substance use service advice; similarly, should not advise stopping psychiatric medications without appropriate medical consultation

• Includes Referral pathways flowchart

World Health Organization (2014)

Guidelines for the identification and management of substance use and substance use disorders in pregnancy [135]

• Philosophy of care / engagement

• Assessment

• Referral pathways

• Practical clinical guidance / medical procedure

• Specific recommended interventions

Overarching principles

1. Prioritizing prevention

2. Ensuring access to prevention and treatment services

3. Respecting patient autonomy

4. Providing comprehensive care (matching complexity of substance use disorder)

5. Safeguarding against discrimination and stigmatisation

• Recommends screening for substance use, and a brief intervention be offered to all women using drugs/alcohol

• Healthcare providers should offer comprehensive assessment and individualised care, which includes care that is responsive to multiple needs including family/relationships, other medical needs, housing and poverty and violence (holistic)

• At the earliest opportunity, recommend cessation of drug use (with appropriate detoxifications services/referrals), with exceptions made for opioid/benzodiazepine use, in which case opioid management treatment, or gradual dose reduction of benzodiazepines using long-acting benzodiazepines is recommended

• In cases of stimulant dependence, psychopharmacological medications are not routinely required, but may assist with symptoms of psychiatric disorders

• Opioid maintenance therapy is recommended (either methadone or buprenorphine) in combination with psychosocial intervention

• Breastfeeding is encouraged, unless specific risks are present (HIV status), and skin-to-skin contact actively encouraged regardless of feeding choice

• Healthcare facilities should have scope/facilities for assessing and treating babies exposed to opioids. If necessary, opioid treatment should be used for exposed infants, and if withdrawal occurs from sedatives or an unknown substance, phenobarbital may be the best initial treatment

• Infants exposed to opioids should remain in hospital for 4–7 days and be monitored for withdrawal symptoms with a validated assessment instrument

• Notes that woman-centred, trauma informed care which includes pharmacotherapy is best-practice but is also the costliest approach