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Table 3 Topics that should be included in a pregnancy and childbearing QPL for women with PKD

From: Co-design of a question prompt list about pregnancy and childbearing for women with polycystic kidney disease: an exploratory sequential mixed-methods study

Topic (‘yes’ responses)

N (%)

Need for genetic counselling and pre-implantation genetic diagnosis (n = 16)

8 (50.0)

Risks for women with PKD getting pregnant (n = 16)

8 (50.0)

If women with PKD can have healthy babies (n = 16)

6 (37.5)

Risk of baby inheriting PKD (n = 16)

6 (37.5)

Impact of PKD and kidney function on pregnancy (n = 16)

6 (37.5)

Impact of pregnancy on PKD and kidney function (n = 16)

6 (37.5)

Whether PKD medications can be used during pregnancy and breastfeeding (n = 16)

6 (37.5)

Things should do before getting pregnant (n = 16)

5 (31.3)

If women with PKD can get pregnant (n = 16)

4 (25.0)